Followup: Last chance for autism-insurance bill to advance

Sunday night, we brought you the story of Allison Dennis, a West Seattle mom whose son Jack (photo left) is autistic, campaigning to get a bill mandating insurance coverage of autism treatment — Shayan’s Law — through the Legislature. Allison says the bill is on the brink of death unless action is taken today:

Senator Karen Keiser, chair of the Senate Health Care Committee, has today to call SB5203 up for a vote in an executive session or it dies.

Shayan’s Law (SB5203) offers protection against the prevalent insurance coverage denials of medically necessary treatments for children on the autism spectrum at an identical cost to Washington State as the Neuro-Developmental Therapies (NDT) bill [HB1412] that proposes to do the same, but falls short due to insurance coverage loopholes within the bill. The insurance industry has carefully crafted provisions that render the NDT bill utterly meaningless for all developmentally disabled individuals who need services, not just the ones on the Autism Spectrum. The influence of the insurance industry is allowing the NDT bill to gain traction on the House side.

Ultimately, states pay in cases of untreated or undertreated populations and SB5203 puts the cost of health care back where it belongs. Shayan’s Law will hold insurance companies accountable for covering diagnosis and medically necessary, evidence based treatment of autism. Under Shayan’s Law, insurers will not be able to get out of accepting their share of this devastating medical condition, as they have been for years here in Washington and around the nation.

It is unthinkable that our lawmakers would choose less protection for the same cost to the state (NDT bill), especially in the current economic crisis. Eight states have passed Autism Insurance Reform similar to Shayan’s Law and 32 more have taken it up this year. We want the same protection for our children. Now more than ever, our state needs relief from the societal costs when children don’t get the intervention they need. Now more than ever, our children need these benefits.

As a Washington voter, I expect fiscally responsible decision making that will yield significantly lower societal costs of autism. SB5203 is an opportunity that Washington State lawmakers cannot afford to pass up. I urge anyone similarly concerned to call Karen Keiser and ask that SB5203 be put to an executive session vote. The deadline for a vote is the 25th – today. Please take part in the legislative process. Grassroots efforts do work and voter participation does make a difference! Her number is 360-786-7664.

West Seattle’s 34th District State Senator Joe McDermott is a co-sponsor of SB5203, but this district’s two State Representatives, Eileen Cody and Sharon Nelson, are supporting the “NDT bill” (HB1412) that Dennis and other autism advocates say has too many loopholes.

9 Replies to "Followup: Last chance for autism-insurance bill to advance"

  • ivan February 25, 2009 (8:06 am)

    This is exactly the kind of reporting and exactly the level of detail that keeps me coming to West Seattle Blog 3-4-5 times a day. Thanks to WSB and thanks to Allison Dennis for this report.

  • John February 25, 2009 (10:55 am)

    Just curious, what are the loopholes in HB1412 and how are the addressed in SB5203?

  • WSB February 25, 2009 (10:58 am)

    The comparisons are in our original story (linked at the start of this update).
    https://westseattleblog.com/blog/?p=14388
    Top-level as explained to me is that 1412 does not cover private therapy if you are getting some version of that therapy at school, plus it has caps for number of visits etc.

  • EileneHutchinson February 25, 2009 (1:34 pm)

    Just a quick note, I just phoned the office of Karen Keiser and was informed that yesterday was the last day to call in Re: this bill, that it is “dead” for this year, but that they will be “keeping an eye on it” for next session.

    I hope this does not drop by the wayside, but that an acceptable form of this bill will be passed in the future.

  • ABA February 25, 2009 (10:26 pm)

    If the loophole does not allow for coverage of private therapies that are being “received” at school, then that is a huge blow. I know that many schools do not, or claim they do not, have the resources to meet the IEPs for all their IEP students. Some school districts in the past have avoided providing the IEP requirements in the “least restrictive environment” to the student. Unfortunately, not every family can afford the legal advice to fight for their rights with a given school district. Even if the child is recommended for 20 minutes of OT or ST in their IEP, they may not receive what they are entitled to in their IEP due to budgetary constrains or issues at the school, so if they are not covered for private therapy, they may not receive services at all.

  • Madashell February 27, 2009 (1:34 pm)

    Regarding the sandbagging of Shayan’s Law

    West Seattleite’s have their representative Eileen Cody to thank for the sandbagging of a bill requiring insurance companies to cover critical therapies for children with autism.

    From a state representative..
    Thanks for your email. I am one of the cosponsors of HB 1210 and a strong
    supporter of this proposal. Unfortunately, it appears that the Chair of the
    Health Care and Wellness Committee did not schedule the bill for a hearing
    and it has died in committee. I do not sit on the Health Care Committee, so
    I am not sure why the Chair did not schedule the bill. It did have a large
    fiscal note – $16 million for Fiscal Year 2009-2011; $22 million for FY
    2011-2013 and $24 million for FY 2013-2015. The Senate version of the
    Autism Insurance Reform bill, SB 5203, did get a public hearing, but did not
    get voted out of committee. I’m disappointed that this bill didn’t move this
    session as it would have been a big step in getting children with autism the
    health insurance coverage they need

    One prominent autism activist is quoted as saying “I simply can’t believe west seattle residents continue to vote her in. I am in total disbelief that West Seattle autism families and their supporters can’t join together and inform their fellow residents, and unite to get rid of that ****… Eileen Cody dart boards are definitely in order, and are likely to be seen on T-shirts around the capital soon. I know many autism parents will be considering a formal protest. Honestly, how does Cody sleep at night? She has single handedly dominated the agenda and denied services for our children with autism for far, far too long. There’s more than just a few folks who has speculated she is being paid (off) by Group Health.”

    Well, this parent and voter knows who will NOT get my vote next time. This goes for Sharon Nelson too. Joe McDermott, on the other hand was on the right side on this issue.

    P.S. I think Keiser’s trying to pull a fast on us with SB 5945 which pulls back NDT services to age six or below.

  • huh? March 1, 2009 (12:13 am)

    i just do not understand where these folks expect the state to find the money for these expensive programs. HELLO? anyone heard of an $8.5 billion deficit? we’d be lucky not to see many existing state health care programs be ELIMINATED! to demand that the state expand coverage to include autism therapies in a year like this seems completely divorced from reality.

  • Madashell March 18, 2009 (1:08 pm)

    “These Folks”?! These folks are your neighbors! You must be shilling for Cody.

  • madashell April 9, 2009 (12:15 pm)

    See below.

    Rep. Cody will be long gone when this tide hits…

    Prepare to care for a huge number of autisic adults

    By Linda Davis The Washington Post

    http://www.cmonitor.com/apps/pbcs.dll/article?AID=/20090407/OPINION/904070328/1028/OPINION02

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