Seeking person/people with Tourette's Syndrome in their lives.

[sbre]

I just learned that my youngest nephew (15) was very recently diagnosed with Tourette’s Syndrome, and after doing a lot of internet searching and reading to get a better understanding of this nasty affliction I’m hoping to find someone to converse with about living with someone who is afflicted.

Either emailing, on the phone or in person (the latter two being my preference) will work, I’m hoping to get a more personal education.

Thank you in advance for any assistance you can give.

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[sbre]

Oops, forgot to add this…

swimbikeruneat at ghee mayl daught kawm

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[sbre]

A huge THANK YOU to:
BA
COF
DY
and
RDR
for your insightful, inspiring & supportive responses, and for your approval to forward them on to my brother and his family.
The Dr’s and internet can teach about the black-n-white of the disease, however its the sharing of experiences like yours that will make it easier for all of us to learn how to live with it day-in and day-out.

Hug your people….

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[sbre]

And to GK who suggested that if/when my nephew “…starts blurting out vulgar and obscene things you should just keep him behind closed doors!”…

Please get your head out of the sand sir, that is not a productive or humane way to approach this (or most any) situation.

Peace

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[savoirfaire]

sbre, I just wanted to say how much I admire the approach you’re taking to this. Information and compassion are a powerful combination! In case GK is still reading, I can’t resist pointing them (and anyone else who cares to know) towards this:

https://www.tourette.org/blogs/about-tourette/debunking-myths-misconceptions/

particularly this one:

Myth #1:
Everyone with Tourette Syndrome (TS) blurts out obscenities.
FACT:
While frequently portrayed in the media as a common symptom of TS, in reality the excessive and uncontrollable use of foul or obscene language, known as coprolalia, only affects 10% of individuals with TS. For those who do have coprolalia, the outbursts they experience are completely involuntary and they often try to mask the obscenities. This myth is important to rectify as it often leads to prejudices against people with TS.

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[pelicans]

Sbre,
Thank you, and second what Savoirfaire said.

BA

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[Author]

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