Hey All!

[miws]

“errr. PAINT area. Not pain. Good lord, that would be another store entirely!”

Hmmmm….I dunno….I was thinking Freudian slip? ;-)

Aw criminy! Chemo brain in full force! I was trying to mouse the cursor down to the keyboard to make the winky smiley! =:-o

Send the medics! :-p

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[miws]

Ok, what I was thinking about (dangerous, I know,) how the WSB gang could be a good help, besides the ongoing good wishes, and heck yeah, maybe a home cooked meal now and then, is once I get home, or perhaps even in transition, is financial aid and such.

The beauty of getting more people involved is simply the fact that with more people, even in standby mode, are there to not only assist in general, but perhaps someone already deals with an issue that comes up.

One thing I’ll need to look into once out, is getting into a program for sleep study. I’ve been on a Cpap machine for the last several nights and have gotten a great deal of help from it.

I’ve long been aware that I must have a sleep disorder of some type, and keep hearing about the study. I wondered why the study? Why can’t I just get the dang machine? Affordability of that alone would likely be an issue.

I now understand, they have to determine exactly what type and level disorder the person has.

Also, I’ll need to make sure I have help when applying more any assistance. I consider myself to be reasonabely intelligent, but I have a short attention span. I can’t multi-task. I have a little saying about myself that multi-tasking for me is my heart beating, and I’m breathing at the same time.

For example, when I was buying a house over 20 years ago, I just had to trust everyone. It’s like I can’t process the info that’s coming at me at that rate. I don’t know the questions to ask.

Anyway, just a few things to think about!

Thanks!

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[JoB]

miws…

you don’t need medics.. just a sense of humor and some days liberal use of the delete key…

but no need to worry here… it hardly matters whether your post is creative or not, we’ll read what we want to into it;>

Aim..

yes, their return policy could get rather stinky ;

the sad thing is that i was sent a whole list of assmotes that would be so right just now…

but out of respect for TR and to keep MIWS from falling out of bed laughing and hurting himslef… i will refrain.

now.. that’s painful!

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[miws]

Aim, don’t know if I’ve met Steve W.

Also, re: paint sticks, a couple years ago, one of the cashiers made up a “Heat for the Seat” large 5 gallon paint stick for me to keep me “in line.”

A visitor from work brought it up last week, and it’s actually come in useful in reaching and dragging stuff to me.

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[JoB]

miws…

i will be glad to add my brain to the mix to help you. .tho with forms it may be like a multiply day.. 1/2 brain times 1/2 brain equals 1/4 brain :)

i think jans has some idea how to navigate the system.. we can ask her.

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[miws]

Jo, I keep a tv remote at my computer desk, and have been known to grab it to do some ‘puter function.

But I started out with WebTV as my net access. I’d mostly use the wireless keyboard, but if I was eating and just mostly scrolling through sites would use the little remote.

So that’s my excuse on that one!

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[JanS]

hey…I heard my name…what am I supposed to be good at? navigating what system?

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[JoB]

JanS..

navigating how to fill out forms to apply for assistance…

Mike has discovered he has a sleep issue the could be treated by CPAP but will have to do sleep studies and may not have insurance for that.. so may need assistance…

didn’t you tell me there is someone at the hospital that can help with that?

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[JoB]

MIWS..

one more day closer to success!

I know you had a late night but i hope you got some sleep last night. i finally did ;)

every day is brighter with some sleep.

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[miws]

Thanks Jo!

Yes, I’ll need to look into sleep studies.

I still need to research insurance. It’s just been my experience on any job I’ve had is that insurance only covers so much, and there are often significant out of pocket costs.

I’m just now feeling like my mind is clear and settled down enough, that I may start researching some of the financial aid and such I’m expecting I’ll be needing.

But absolutely, any info anyone has is most helpful.

Thanks all!

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[miws]

Today’s walk, about 400ft!

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[JoB]

mike..

you are hiking now. Go any further and you will need a backpack:)

The best place to do the checking is at the hospital.. they have someone in patient services who can help yo figure it all out…

like you have the energy.. right:>

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[miws]

I like the backpack idea, Jo!

*singing* Valder ree! Valder rah!*/singing*

Maybe I’ll start yodeling and freak everyone here out!

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[JoB]

You have energy to yodel?

what the heck are you still doing in that hospital boy?

oh yeah.. the cocktails keep you there ;~>

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[JoB]

Mike,

I am lost in time and space this week. When do you get to say goodbye to the drip?

I am hoping it is soon.

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[JoB]

Mike,

i hope your silence means that you are home and sleeping off your hospital stay…

let us know how you are.

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[miws]

Hey gang!

Sorry I’ve been silent the last couple of weeks. I was moved back to ICU, because the evening before, I developed a fever of 100.8, and low BP. Moved to ICU the next day, where computer use was not allowed.

Today, I moved to telemetry, in the same bldg, and can have the ‘puter.

I had another issue come up, my heart rate has been up, so that’s what’s keeping me in this bldg.

In other news….my platelets have been coming up each day for the last week or so. White count was still dropping, but started coming back up a couple days ago, then have leveled out the last two days.

Everything that has happened, even the negative sounding stuff, is considered normal for recovering after the chemo, except the heart rate, which is a separate issue.

Gotta go now. Lotsa catching up to do.

Thanks all!

Mike

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[acemotel]

Hey, Mike! Great to hear from you again. Hang in there. Sending good thoughts your way.

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[Sue]

Mike, I was away on vacation when this was originally, so this is the first I’m seeing of this thread. Just wanted to let you know I’m sorry you’re going through this, but am keeping you in my thoughts as you do and sending positive energy your way. If I can help in any way now or when you’re home, you can contact me through my website. And my husband uses a CPAP – if you have any questions on that, the sleep study process, etc., just let me know.

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[miws]

Thanks ace and Sue!

Thanks for the offers of help, Sue. I plan on using any of the “resources” here on WSB as needed!

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[charlabob]

Mike, we’re so glad to hear from you; we actually were wondering how you were doing when a few of us were gathered at Circa tonight. It’s as if you heard us!

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[JoB]

Mike…

charlabob tells truth.. you must have heard us asking about you at circa tonight because you posted while we were there.

JanS and I thought maybe you had taken a turn in ICU… glad to hear you are back out.

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[WSB]

Mike, glad to hear from you. Saw your comments on a couple of main-page stories and was going to send you a note if I hadn’t seen this. Sorry to hear you’re not home yet but hope you are getting good support in getting well. — TR

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[beachdrivegirl]

Glad to haer that you are doing better. you are in my thoughts.

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[miws]

Thanks all!

Today’s update: platelets continue to rise, white cell count up to 300, with a goal of 1000. This count can continue to rise fairly quickly.

Mike

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