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November 10, 2012 at 7:14 am #776089
JanSParticipantactually,my message says I am not taking clients until after November 30. Yeah, I’m in a big Catch 22 at the moment regarding rehab. I need to be walking, and working on strength and endurance, but the skin graft on my foot is not entirely healed ( but doing well so far), and it prevents me from walking more than a few feet at any given time. I’m in a wheelchair most of the time when I need to get somewhere. It’s kind of a fun ride, but prevents me from doing what I do for a living :-(
November 11, 2012 at 9:27 pm #776090
miwsParticipantbump
November 15, 2012 at 3:37 am #776091
miwsParticipantNovember 15, 2012 at 4:42 pm #776092
JoBParticipantas friends of jan we are in a catch 22 too ;->
pushing her hard enough to get on her feet as much as she can without slowing down healing on her foot.
seriously.. the current rules create a real catch 22 for jan. She is no longer eligible for nursing home care once her foot heals enough to no longer require daily dressing changes…
but she still lives up a flight of stairs and no matter how good we are at bring what she needs in.. she still has to negotiate those stairs at least 3 times a week for dialysis whether she gets strength back in her legs or not.
I have looked for solutions but unless a couple of real hunks out there volunteer to carry her up and down those stairs for dialysis three times a week for a week or two …
we need to mobilize any and all resources to getting jan as fit as we can before she has to leave the nursing home.
anyone willing to offer a very gentle calf or shoulder massage?
or show up to chat her way through a round of wheelchair/bed exercises..
or to offer an arm for a jaunt to the hall and back
or ????
We are a very creative community…
give us a problem.. we find solutions
jan is either going to hate me or love me for letting this genie out of the box ;-)
either way, if she makes progress, it’s worth it.
November 16, 2012 at 7:47 pm #776093
RagsParticipantIs home dialysis an option?
November 16, 2012 at 8:01 pm #776094
JoBParticipantRags..
jan was working towards home dialysis when pneumonia followed by the need for heart surgery followed by the land of complications interrupted the process.
is it an option eventually? maybe. right now she needs the continual bloodwork monitoring and IV medications and ability to drain excess fluid that come with the dialysis she gets at the kidney center.
November 17, 2012 at 3:34 am #776095
RagsParticipantJo…I’m sure you’ve pursued every option, but I just feel like there should be a Kidney Foundation somewhere that could help in situations like this. There are many resources for cancer patients to get help, e.g., the American Cancer Society, Susan G. Komen, et. so I’m hoping there’s a kidney support organization out there that could help Jan. What about the West Seattle Helpline or King County United Way? I’m not familiar with the services they provide but might be worth checking out. Another suggestion is to send requests to the local churches and health clubs in West Seattle and ask them to seek volunteers from their congregations/memberships.
November 17, 2012 at 3:41 am #776096
RagsParticipantps. I will keep pursuing too!
November 17, 2012 at 8:05 am #776097
JanSParticipantRags, Jan here. Right now I have a potential live donor – a niece in Colorado. She is not a perfect match, since I have mild antibodies against her. The transplant clinic advised that they could do plasmapharesis and IVIg therapy to make the match better. I am also still pursuing a better match.May have another local person who wants to be tested. I am on hold at the transplant clinic as we speak, since I’m still recovering from the heart surgery (9/26). If I had had no complications, I had expected to take 1-2 months off. As it stands, I haven’t been home in over 7 weeks now. I am in rehab, waiting for a skin graft on my foot to heal, cannot walk, let alone work, and mostly use a wheelchair. I probably won’t work again before the end of the year.I’m a massage therapist..gotta stand and move to do that. Then…I’ll hopefully be able to plan a kidney transplant. And will have to take 2-3 months off after that – aagain, with no income. ( Also had pneumonia and hemolytic anemia in July – 2 weeks at Swedish – lol)
Yeah, you could say it’s not my year….but I keep plugging along. I’m trying to hold on to my apt., eetc, as best as I can. . It took a lot of throwing pride out the window to start this funding thing…but…sometimes you have to do what you have to do, and this community has been generously wonderful. I wrote to Helpline, never heard back from them. I have researched other kidney organizations, and haven’t found anything so far as far as helping with expenses. So, I do what I have to do. So far, so good :)
If you find anything in your searches, let me know…my email is on my website…click on my name …thanks :)
November 20, 2012 at 3:35 am #776098
miwsParticipantBump!
November 20, 2012 at 4:30 am #776099
JanSParticipantThanks, Mike :)
November 23, 2012 at 8:53 pm #776100
miwsParticipant:-)
November 30, 2012 at 12:51 am #776101
miwsParticipantWelcome home bump!
November 30, 2012 at 3:02 am #776102
JanSParticipant:)
March 4, 2013 at 3:21 pm #776103
miwsParticipantMarch 4, 2013 at 3:36 pm #776104
JoBParticipantThis is a good time to show Jan a little love..
today.. on her birthday.. she sees her first client since taking a little time off to have surgery.. several months ago.
Her go fund me account is pretty much tapped out again and her social security barely covers her rent.
she could use a little help while she tries to get healthy enough to pop back onto the transplant list.
it’s been a rough year for Jan..
I am tickled to be able to wish her a happy birthday. It was touch and go there for a while.
March 4, 2013 at 10:27 pm #776105
miwsParticipantAnd a Bump! :-)
March 6, 2013 at 4:12 am #776106
gmabettyParticipantMaybe one day soon I can drop by to see Jan and re-introduce myself and interrupt her “exciting” day. I met her breifly once long time ago at Nickelsville Pancake Breakfast.
As I’ve said before— There are so many kind caring people on this blog. I see some of them above.
March 6, 2013 at 9:53 pm #776107
miwsParticipantMarch 7, 2013 at 10:39 pm #776108
miwsParticipant:-)
March 7, 2013 at 10:57 pm #776109
JanSParticipantan update..have healed from the heart surgery, have healed from the complications…energy is much better, am working part time very slowly (hey, have to start somewhere). I will be on hold at the transplant clinic until the end of April or so, and then, hopefully, things will start moving forward as far as transplant is concerned. If/When that happens, I will have to take another 3 months off. Lots of non-vacation time off in my life…sigh..oh, for a warm beach and a tropical drink – with umbrella in it :)
March 7, 2013 at 11:52 pm #776110
miwsParticipantMarch 11, 2013 at 4:13 pm #776111
miwsParticipantMarch 12, 2013 at 5:17 pm #776112
JoBParticipantcan she has cabana boy too?
March 12, 2013 at 6:08 pm #776113
miwsParticipantcan she has cabana boy too?
The Good News: Yes, yes she can haz.
The Bad News: It’s this dude…….
(Photo by DBP)
Mike
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