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1. Jiggers
   Member Profile

   

   I'm thinking about starting a support group of sort with folks who has to battle life-long immuno deficiencies. I'm not sure how to go about it yet, but if anyone is interested email me back at jackpotaces@hotmail.com
   I'm also thinking about writing a book on it as well since I've been dealing with it since I was a kid. Any editors out there?

   Posted 2 years ago #         

2. JanS
   Member Profile

   

   kudos, jiggers. First, it's hard to deal with lifelong things, and second, respect for being willing to talk about it, teach about it, share about it, learn from it, and from other people !

   Posted 2 years ago #         

3. pigeonmom
   Member Profile

   

   Emailed you.

   Posted 2 years ago #         

4. JoB
   Member Profile

   jiggers...

   i think there is a real need for a support group for people who are battling chronic illness and who have fallen through the cracks in the support system...

   i would be glad to help..

   Posted 2 years ago #         

5. ellenater
   Member Profile

   

   isn't there already a chronic fatigue support group on here, too? you might want to connect with those folks if you haven't already. Good luck. :)

   Posted 2 years ago #         

6. JanS
   Member Profile

   

   ellenator...jiggers may not be talking about chronic fatigue syndrome. It may be something entirely different. Although...JoB may be able to give him some pointers about how to go about it. :)

   Posted 2 years ago #         

7. ellenater
   Member Profile

   

   oh ya, duh. I just assumed. Sorry, Jiggers. That was rather insensitve...

   Posted 2 years ago #         

8. JoB
   Member Profile

   jiggers is welcome at the chronic fatigue syndrome support group.. since many of the issues are similar...

   the next meeting is thursday nov 5, 1 PM at Cafe Rozella in white center.

   but i would also be glad to help him with the logistics of setting up a separate group.

   Posted 2 years ago #         

9. ellenater
   Member Profile

   

   Cafe Rozella, good choice!

   Posted 2 years ago #         

10. Kevin
    Member Profile

    Jiggers and JoB too,
    .
    Here is a very informative site run by a woman over in the UK. I have talked to her via email for a number of years. A lot of good information.
    .
    "Autoimmunity - the hidden link"
    .
    http://www.autoimmunity.co.uk/
    .

    Posted 2 years ago #         

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